#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited about today’s #patientchat |
| Patient Chat @patientchat Please continue with intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
 | Alexa Jett 🦋 @ohhiialexa Hello #patientchat ! I’m Alexa Jett. Thyroid Cancer Survivor, Blogger, and AYA (Adolescent/Young Adult) Cancer advocate in East Texas. |
 | Vera Rulon FAHIMA @vrulon Hello @patientchat! Vera here from NY - artist, patient advocate, etc. Looking forward to the chat today! #patientchat |
 | Nick Dawson @nickdawson @patientchat @power4patients Joining from 35,000’ somewhere over Minnesota (I think) - will tag along as long as infight WiFi allows. #patientchat |
 | Carly Flumer (she/her) @carlyflumer Hey guys! I’m Carly, a #thyca patient who is allll about meaningful and effective patient-provider communication. #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
 | Inspire @InspireIsHealth Hello to #patientchat, John Novack from Inspire checking in. |
 | Laurie Reed @LReedptadvocate @patientchat Laurie here, patient advocate, tweeting from the Pacific Northwest. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @carlyflumer Hey Carly! #patientchat https://t.co/7eTtGoPlcy |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines at https://t.co/fs20NR954d #patientchat |
| Nick Dawson @nickdawson @teaminspire Hey John! #patientchat |
 | Klippel-Feil Syndrome Freedom @KFS_Freedom Join now! Chat with other patients! 12pm CT |
| Patient Chat @patientchat Today's #patientchat topic is Removing Barriers to a Successful Patient-Provider Relationship https://t.co/WO3iJp2Zhy https://t.co/j4jvTHfgfE |
 | Ody @OdyO11 @patientchat Hi, I'm a patient with rare(ly diagnosed) disorders from Europe. I'm pretty tired today, so I might not join for long. #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Vera Rulon FAHIMA @vrulon @nickdawson @teaminspire Hi John and all! Great to see you here on #patientchat! |
 | Alan Brewington @abrewi3010 Alan here. I think I’m having a reaction to a steroid shot in my right knee yesterday. Will be using the chat as a pain distraction along with the usual learning opportunity #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
 | John Hoben @jhoben @patientchat Greetings @patientchat #patientchat from Manatee County, Florida. |
| Patient Chat @patientchat T1: What would a good patient-provider relationship look like to you? #patientchat https://t.co/ZMHB5DujFv |
 | Pamela Walters @pammor123 #patientchat Hi, excited about the chat today! |
 | Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What would a good patient-provider relationship look like to you? #patientchat https://t.co/ZMHB5DujFv |
| Inspire @InspireIsHealth RT @patientchat: T1: T1: What would a good patient-provider relationship look like to you? #patientchat https://t.co/ZMHB5DujFv |
 | Carolyn Holmes @HolmesCarolyn23 RT @patientchat: T1: T1: What would a good patient-provider relationship look like to you? #patientchat https://t.co/ZMHB5DujFv |
 | Dr. Phyllisa Deroze @not_defeated Hello everyone! #patientchat |
| Alexa Jett 🦋 @ohhiialexa T1: Total transparency, respect, and shared decision making. A big thing for me is talking about what the future looks likes. I love that my oncologist cares what’s going on in my life and I get updates on her family too! #patientchat |
 | Seth Rotberg @Srotberg15 Hi everyone and happy Friday! Excited to join today’s #patientchat to connect and learn from others. |
| Patient Chat @patientchat RT @ohhiialexa: T1: T1: Total transparency, respect, and shared decision making. A big thing for me is talking about what the future looks likes. I love that my oncologist cares what’s going on in my life and I get updates on her family too! #patientchat |
| Ody @OdyO11 @patientchat T1: Mutual trust. Enough time. Shared decisions. Mutual respect. Providers as experts of their learned knowledge and experience. Patients as experts of their own experiences, body perception and the specialized knowledge they gathered. #patientchat |
 | Mary MACK @MaryOCMack T1: one where there is a good rapport and remains good even if the patient’s health is on the decline. A sense of mutual trust and a sense of equality. #patientchat |
| Carly Flumer (she/her) @carlyflumer @patientchat Having a good relationship with your doctor or anyone on your care team means making sure you’re comfortable with them. They are there to help you, & if you don’t feel like there is open communication, willingness to listen, the relationship isn’t healthy. #patientchat |
| Dr. Phyllisa Deroze @not_defeated T1. Someone who listens to my issues and we have a conversation admit opens. #patientchat |
| Vera Rulon FAHIMA @vrulon T1: Good #patient #provider relationship must be a partnership. Able to challenge each other. Talk through all options & practice #participatory #medicine @S4PM #patientchat |
| Seth Rotberg @Srotberg15 RT @carlyflumer: @patientchat Having a good relationship with your doctor or anyone on your care team means making sure you’re comfortable with them. They are there to help you, & if you don’t feel like there is open communication, willingness to listen, the relationship isn’t healthy. #patientchat |
| Alan Brewington @abrewi3010 A1 one were my quality of life is the basis for all communication. Active communication revolving around empathy on both sides vs getting Dr or Mr B titles right. Campfire story time and social interaction based. #patientchat |
| Laurie Reed @LReedptadvocate @patientchat T1 Great communication based on listening, trust, and empathy from both physicians and patients. A willingness for physicians to admit when they might not have an answer but the commitment to help find one. #patientchat |
| Vera Rulon FAHIMA @vrulon @MaryOCMack #Equality is paramount. It's a partnership. #patientchat |
 | Melissa VanHouten @melissarvh One with open communication/discussion, mutual respect, honesty, demonstrated empathy, and genuine collaboration and cooperation. #PatientChat |
| Ody @OdyO11 RT @carlyflumer: @patientchat Having a good relationship with your doctor or anyone on your care team means making sure you’re comfortable with them. They are there to help you, & if you don’t feel like there is open communication, willingness to listen, the relationship isn’t healthy. #patientchat |
| Carly Flumer (she/her) @carlyflumer Also, I’ll tie this into #healthliteracy as I do with everything...speaking in plain language! Any relationship requires clear communication on both ends. #patientchat |
| John Hoben @jhoben T1. Making a *real* deep, meaningful human Connectome connection whereby the patient and the physician/clinician/other health care professional know each others’ life stories. #patientchat |
| Ody @OdyO11 RT @melissarvh: One with open communication/discussion, mutual respect, honesty, demonstrated empathy, and genuine collaboration and cooperation. #PatientChat |
| Inspire @InspireIsHealth @patientchat T1: This column (part of the Mayo Clinic/Inspire series) by @fmdgirl comes to mind as an example of the intricacies and depth of the relationship: https://t.co/ilPngbcKRi. #patientchat |
| Patient Chat @patientchat Topic 2 (T2:) coming up...#patientchat |
| Vera Rulon FAHIMA @vrulon @jhoben Well stated John. I made a point to find a primary care doc who is like me and we often talk about our lives and experiences. #patientchat |
| Vera Rulon FAHIMA @vrulon RT @teaminspire: @patientchat T1: @patientchat T1: This column (part of the Mayo Clinic/Inspire series) by @fmdgirl comes to mind as an example of the intricacies and depth of the relationship: https://t.co/ilPngbcKRi. #patientchat |
| Patient Chat @patientchat T2: What can be considered barriers to effective patient-provider relationships? #patientchat https://t.co/JvKGOeSw57 |
| Inspire @InspireIsHealth RT @ohhiialexa: T1: T1: Total transparency, respect, and shared decision making. A big thing for me is talking about what the future looks likes. I love that my oncologist cares what’s going on in my life and I get updates on her family too! #patientchat |
| Nick Dawson @nickdawson @patientchat T1 #patientchat my first thought isn’t an answer so much as a reaction - it’s really hard. It is almost always an inorganic relationship, one based on power differentials, urgent needs, and a strange economic transaction. |
| Alexa Jett 🦋 @ohhiialexa T2: Scheduling issues. Too many patients in one day, and little time with patients can cause burnout for both sides. I also think another barrier is not acknowledging that the patient is the co-pilot in their care. #patientchat |
| John Hoben @jhoben T1. We have so much potential to tap through the human Connectome by knowing each others’ stories. Use tools and technologies that summarize them individually and at scale (disclosure: @PatientWisdom is a business associate) to quickly and effectively connect. #patientchat |
 | Christina Lizaso @btrfly12 RT @carlyflumer: Also, I’ll tie this into #healthliteracy as I do with everything...speaking in plain language! Any relationship requires clear communication on both ends. #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T2: T2: What can be considered barriers to effective patient-provider relationships? #patientchat https://t.co/JvKGOeSw57 |
| Carly Flumer (she/her) @carlyflumer @patientchat Barriers? Again, clear communication. Lol sorry but really, if you don’t understand what your doctor is telling you, there’s a problem. Health care is about YOU as a patient getting what YOU need to make the healthiest decisions. #patientchat |
| Inspire @InspireIsHealth @patientchat T1: Patient-provider relationships can look like this as well https://t.co/ZOWnKR2ltm though we suspect they're relatively rare. HT @1111linno @DrMisialek #patientchat |
| Vera Rulon FAHIMA @vrulon T2: A major barrier is a #healthcare #provider who doesn't listen & a #patient who isn't honest. #Communication is paramount. Both ways. #patientchat |
| Mary MACK @MaryOCMack T2: One of the biggest barriers is built in For-Profit mechanisms. They erode trust and are bad for the relationship. #patientchat |
| Carly Flumer (she/her) @carlyflumer @ohhiialexa Yes! I hate how appointments have turned into 10-15 minutes, and they seem even quicker! #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T2: T2: What can be considered barriers to effective patient-provider relationships? #patientchat https://t.co/JvKGOeSw57 |
 | Marcela Musgrove @marcela @patientchat When you are on uneven footing. When they only see you at your worst and have no idea what is "normal" for you #patientchat |
| Laurie Reed @LReedptadvocate @patientchat T2 Administrative demands on physicians that make a focus on actual care nearly impossible. A system that incentivizes based on tests run and quick turnaround rather than on quality of care. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @carlyflumer I agree fully and it’s not working for anybody!!! #patientchat |
| Melissa VanHouten @melissarvh Limited time for appointments; poor communication skills; differences in education levels, culture, gender, ethnicity; lack of continuity of care; lack of engagement. #PatientChat |
| Alan Brewington @abrewi3010 A2 health literacy rates and language . Both happen on both sides. Docs and patients often tell their stories differently. This can be overcome with time but our current system does everything possible to destroy time. #patientchat |
| Vera Rulon FAHIMA @vrulon @carlyflumer @patientchat Yes. It's 2-way communication. The #provider needs to stay away from #medical jargon, and the #patient should feel #empowered to ask questions and challenge #patientchat |
| Nick Dawson @nickdawson @patientchat T2: #patientchat one thing I’ve seen a lot during research is the ‘principal / agent problem’ - you need something (care, a DX, an RX, an appointment) from someone who’s incentives are likely different (not maliciously, just by circumstance) than yours. |
| Vera Rulon FAHIMA @vrulon RT @abrewi3010: A2 health literacy rates and language . Both happen on both sides. Docs and patients often tell their stories differently. This can be overcome with time but our current system does everything possible to destroy time. #patientchat |
| Patient Chat @patientchat #patientchat |
| Patient Chat @patientchat #patientchat |
| Nick Dawson @nickdawson @MaryOCMack #patientchat yeah, the economics really skew the relationship, even when both the patient and provider try and compensate for them. |
| Ody @OdyO11 @patientchat T2.1: - a cycle of distrust. It often starts when doctors dismiss their patients' experience. - lack of scientific thinking and doctors being uncomfortable around medical uncertainty #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: What can be considered barriers to effective patient-provider relationships? #patientchat https://t.co/JvKGOeSw57 |
| Patient Chat @patientchat Topic 3 (T3:) coming up...#patientchat |
| Nick Dawson @nickdawson @LReedsbooks @patientchat Well said. I’ve gained a ton of empathy in the last few years for front line providers - they are being asked to do much more, with more complex patients, in a more complex environment, without any more help. #patientchat |
| Alan Brewington @abrewi3010 A2 strange and morbid payment arrangements. We pay to get thru the door then pay again to have our symptom data translated to a disease. Lots of room for unintended offense due to access issues payment arrangement methodology creates. #patientchat |
| John Hoben @jhoben T2. Time, money and energy all are potential barriers (or enablers) to patient relationships. Specifically, time spent looking at the computer screen instead of into the patient’s eyes, money wasted on useless compliance and energy of both parties. #patientchat @patientchat |
| Inspire @InspireIsHealth @patientchat T2: We see examples of language and cultural barriers result in suboptimal care, and even medical errors: https://t.co/BeA64yVlV0 HT @jun_soojin #patientchat #patientsafety |
| Patient Chat @patientchat T3: What are some strategies for removing the barriers to an effective patient-provider relationship? #patientchat https://t.co/z7Jz6gGKg6 |
| Seth Rotberg @Srotberg15 @carlyflumer @ohhiialexa Did you know that the average time spent with the doctor is 12 minutes. How are we supposed to build relationships with them if we spend more times in the waiting room. #patientchat |
| Alexa Jett 🦋 @ohhiialexa T3: Cost, insurance, ability to get in to see your provider, and accessibility are some of my main concerns. I’m sure they are to providers too. Things need to work well on both sides for the best health care. #patientchat |
| Ody @OdyO11 @patientchat T.2.2: - psychologization of symptoms, leading to dismissal, denial of differential diagnostic workup and lack of care - power imbalance and coercion - administrative hurdles #patientchat |
| Alexa Jett 🦋 @ohhiialexa Truth! #patientchat |
| Carly Flumer (she/her) @carlyflumer @Srotberg15 @ohhiialexa That’s so disappointing. #patientchat |
| Vera Rulon FAHIMA @vrulon @jhoben @patientchat John. On point. #patientchat |
| Inspire @InspireIsHealth RT @jhoben: T2. Time, money and energy all are potential barriers (or enablers) to patient relationships. Specifically, time spent looking at the computer screen instead of into the patient’s eyes, money wasted on useless compliance and energy of both parties. #patientchat @patientchat |
| Patient Empowerment Network @power4patients We developed this for #MPN patients but it has some great tips for everyone who wants to communicate better with their care team #patientchat https://t.co/IlkZuyy9lv |
 | 𝙀-𝙇𝙀𝙀 𝙇𝙊𝙑𝙀 💋 @E_LeeLove1 RT @melissarvh: One with open communication/discussion, mutual respect, honesty, demonstrated empathy, and genuine collaboration and cooperation. #PatientChat |
| Alan Brewington @abrewi3010 A3 the good and the bad of our lives needs to be shared in all appointments, not just the bad. Developing human centered emphathy is the antidote to the 15 min appointment #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What are some strategies for removing the barriers to an effective patient-provider relationship? #patientchat https://t.co/z7Jz6gGKg6 |
| Carly Flumer (she/her) @carlyflumer @patientchat Tell your doctor when you’re not clear about what they’re saying. Don’t be afraid to ask questions. Utilize the patient portal if your practice offers one. This has helped me immensely in the number of doctors I see. #chronic #rare #patientchat |
| Vera Rulon FAHIMA @vrulon Wonderful tool Thank you @power4patients #patientchat |
| Dr. Phyllisa Deroze @not_defeated RT @patientchat: T3: T3: What are some strategies for removing the barriers to an effective patient-provider relationship? #patientchat https://t.co/z7Jz6gGKg6 |
| Marcela Musgrove @marcela T3: It would be nice to be able to keep your provider no matter if you switch insurance plans or even move since you can do a lot with telehealth, but it doesn't seem to cross state lines. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T3: T3: What are some strategies for removing the barriers to an effective patient-provider relationship? #patientchat https://t.co/z7Jz6gGKg6 |
| Ody @OdyO11 @patientchat T3: Not an easy question, because most change would need to come from the doctors' side or the administrative side. Teach scientific thinking, dealing with uncertainty and compassion in med school. Remove incentives for wastebasket diagnoses. Involve ethics. #patientchat |
| Patient Empowerment Network @power4patients We're full of tips today! 15 Tips To Get the Most From Your Doctor’s Visit #patientchat https://t.co/5CxkAXYG72 |
| Laurie Reed @LReedptadvocate @patientchat T3 Change happens by focusing on the behaviors - specific actions to take that demonstrate the more abstract qualities of listening and empathy. e.g. turning away from the computer to face the patient. It takes practice. #patientchat |
| Carly Flumer (she/her) @carlyflumer @OdyO11 @patientchat Yes to all of this! There are EHR’s but still so much paperwork! Also, let’s get different EHR’s to “speak” to one another. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @Rose_of_Sharon8 @patientchat One of my specialists require me to write down my questions and concerns in the waiting room, including potential medication refills. It’s been pretty positive so far! #patientchat |
| Carly Flumer (she/her) @carlyflumer @Rose_of_Sharon8 @patientchat Love these ideas!! #patientchat |
| Melissa VanHouten @melissarvh To some extent, think it'll require both parties (patient & provider) 2 examine own behavior & honestly ask themselves what they could do 2 make relationship better. Where are deficiencies & how can we move closer 2 understanding & cooperation that = good outcomes? #PatientChat |
| Dr. Phyllisa Deroze @not_defeated T3: Simply asking if the Pershing care understands, agrees to, and has the resources to implement the suggested plan of action. #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up...#patientchat |
| Vera Rulon FAHIMA @vrulon T3: Strategies to remove barriers - #communication training in #medical school, culture change - teach empathy to all who work in a #healthcare setting (more to come) #patientchat |
| Ody @OdyO11 @carlyflumer @patientchat I'd add: Allow patients to proof-read medical records and make sure any errors will be corrected. Otherwise, it can be a game of whisper-down-the lane. Often, reports are trusted more than what the patient says. This is problematic. #patientchat |
| Patient Chat @patientchat T4: What could providers do to improve relationships with patients? #patientchat https://t.co/rn6lEdA5C9 |
| Seth Rotberg @Srotberg15 RT @Rose_of_Sharon8: @patientchat T3: |
| Inspire @InspireIsHealth RT @patientchat: T4: T4: What could providers do to improve relationships with patients? #patientchat https://t.co/rn6lEdA5C9 |
| Alexa Jett 🦋 @ohhiialexa @OdyO11 @carlyflumer @patientchat Oh, I’ve experienced this problem myself. Thanks so much for bringing it up. Excellent point!! #patientchat |
| Alan Brewington @abrewi3010 A3 we need new reimbursement models that reflect our move from paternalistic care. When I’m in afib and a 8 out 10 on the pain scale talk of money is insulting. #patientchat |
| Vera Rulon FAHIMA @vrulon Here's a wonderful program that helps #medical professionals learn how to #communicate with #patients #patientchat https://t.co/OZtjSsxrpW |
| Pamela Walters @pammor123 #patientchat T4: Take time to talk with patients and listen to concerns. Show interest without seeming rushed. |
| Alexa Jett 🦋 @ohhiialexa T4: There is an argument here for holistic medicine. And by that I mean acknowledging all facets of care. Mental and emotional health is a HUGE quality of life issue. These should all be regularly asked about by a provider. #patientchat |
| Mary MACK @MaryOCMack T3: USA needs a universal care system, where for-profit mechanisms aren’t an unwanted intruder into the doctor/patient relationship. Surely USA can use templates of other successful countries that don’t allow healthy people to die because of lack of afford. access #patientchat |
| Vera Rulon FAHIMA @vrulon RT @OdyO11: @carlyflumer @patientchat I'd add: @carlyflumer @patientchat I'd add: Allow patients to proof-read medical records and make sure any errors will be corrected. Otherwise, it can be a game of whisper-down-the lane. Often, reports are trusted more than what the patient says. This is problematic. #patientchat |
| Carly Flumer (she/her) @carlyflumer @patientchat Use the “teach-back” method to make sure patients understand what was told. Failed communication can mean non-compliance and poorer health outcomes. Can you tell I’m a #healthliteracy nerd? Lol #patientchat |
| Ody @OdyO11 @patientchat T4: Don't mistrust your patients. Believe them. Ask for consent in anything you do. This includes asking for psychosocial factors. Don't use coercion. Be empathic. Value your patients' experience and expertise. Be open to learning with and from your patients. #patientchat |
| Alan Brewington @abrewi3010 A3 at the end of each appointment the doc, patient, and caregiver have to answer “did I get it?” This is then tracked as the starting point for the next conversation #patientchat |
| Melissa VanHouten @melissarvh Focus on my concerns/goals; make a genuine attempt @ seeing the impact of this illness on my life-not just physical but emotional, mental, spiritual, & financial as well; don't talk down 2 me or downplay my concerns & suggestions, as I am capable of rational thought. #PatientChat |
| Alexa Jett 🦋 @ohhiialexa @carlyflumer @patientchat I like this approach a lot. It should be utilized more! #patientchat |
| Carly Flumer (she/her) @carlyflumer @pammor123 I felt rushed during a recent appointment, and I was shocked to say the least. I didn’t feel like a patient, but just another person to get to. #patientchat |
| Seth Rotberg @Srotberg15 @carlyflumer @patientchat Carly there was an app I was recently told about called @AbridgeHQ which actually allows someone to record their conversation with the doctor so they can go back later and have a better understanding of their care plan. #patientchat |
| Ody @OdyO11 @patientchat T4.2: Listen to your patients' concerns. Allow them to proof-read your reports. Be humble and curious. Make your office a place where patients will feel safe, supported and uplifted. #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up...#patientchat |
| Seth Rotberg @Srotberg15 Couldn’t agree more! #patientchat https://t.co/tj5NUo7Xuo |
| Alan Brewington @abrewi3010 A4 I understand this question but that doesn’t mean I like it. How might we (collectively) improve this relationship should be the starting point. Everyone included. #patientchat |
| Marcela Musgrove @marcela RT @OdyO11: @patientchat T4: @patientchat T4: Don't mistrust your patients. Believe them. Ask for consent in anything you do. This includes asking for psychosocial factors. Don't use coercion. Be empathic. Value your patients' experience and expertise. Be open to learning with and from your patients. #patientchat |
| Patient Chat @patientchat #patientchat |
| Patient Empowerment Network @power4patients @Srotberg15 @carlyflumer @patientchat @AbridgeHQ We've checked out @AbridgeHQ too! It seems like a great tool for both patients and care partners. #patientchat |
| Patient Chat @patientchat T5: What could patients do to improve their relationship with healthcare providers? #patientchat https://t.co/Ib0yIDzd79 |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: What could providers do to improve relationships with patients? #patientchat https://t.co/rn6lEdA5C9 |
| Carly Flumer (she/her) @carlyflumer @Srotberg15 @patientchat @AbridgeHQ So glad to hear that! Thanks, @Srotberg15! #patientchat |
| Alexa Jett 🦋 @ohhiialexa @Srotberg15 Thank you! Seeing my viewpoint get a gif makes me happy! 😂 #patientchat |
| Alexa Jett 🦋 @ohhiialexa RT @Srotberg15: Couldn’t agree more! #patientchat https://t.co/tj5NUo7Xuo |
| Vera Rulon FAHIMA @vrulon T4: Providers can learn to listen, find the time, be accepting of an #empowered #patient who will do their own research & ask the right questions. Ask about #patient personal life. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: What could patients do to improve their relationship with healthcare providers? #patientchat https://t.co/Ib0yIDzd79 |
| Vera Rulon FAHIMA @vrulon T5: #patients can ask questions if they do not understand - if needed, bring a friend to office visit #patientchat |
| Alexa Jett 🦋 @ohhiialexa T5: Respect the providers time. Have your list of questions ready to go, show up on time, and be present. Bringing someone else can help remember things also. (Or @AbridgeHQ as others have pointed out.) #patientchat |
| Laurie Reed @LReedptadvocate @patientchat T4 Create an awareness of the mpact on interactions with patients and strive to incorporate behaviors to improve these interactions. #patientchat |
| Pamela Walters @pammor123 #patientchat T5: Good question, I would love to know the answer to this myself, as a patient! |
| Melissa VanHouten @melissarvh Come 2 appts prepared-written ?s re your top few issues; know the goal of the appt & have reasonable expectations; see your doc as human & fallible; keep an open-mind re treatments & hear the doc out; explain yourself clearly & ask ?s when you don't understand. #PatientChat |
| Marcela Musgrove @marcela RT @melissarvh: Come 2 appts prepared-written ?s re your top few issues; know the goal of the appt & have reasonable expectations; see your doc as human & fallible; keep an open-mind re treatments & hear the doc out; explain yourself clearly & ask ?s when you don't understand. #PatientChat |
| Ody @OdyO11 @patientchat T5: Again, not so easy because of the power imbalance. Ultimately, it will depend on the doctor. Educate yourself on scientific thinking. Be respectful of your doctor's time. Thank the doctors who support you. #patientchat |
| Patient Chat @patientchat Last topic (T6:) coming up...#patientchat |
| Laurie Reed @LReedptadvocate @patientchat T5 Don't be passive in the relationship, take ownership of your own care. Come prepared with questions. Listen carefully. #patientchat |
| Alan Brewington @abrewi3010 A5 to often our pain causes actions which are the result of pain and not our intelligence. Generally speaking docs/nurses are practicing from a place of honest but running a business dictated by a bad system. This is a perfect storm for a bad experience #patientchat |
| Alexa Jett 🦋 @ohhiialexa RT @LReedsbooks: @patientchat T5 Don't be passive in the relationship, take ownership of your own care. Come prepared with questions. Listen carefully. #patientchat |
| Patient Chat @patientchat T6: What role does technology play in improving/hindering a good patient-provider relationship? #patientchat https://t.co/wVgOQhCOx8 |
| Alan Brewington @abrewi3010 A6 technology is a tool, not a medicine or cure. As tech improves I think everyone losses site of this. #patientchat |
| Alexa Jett 🦋 @ohhiialexa T6: I like technology in medicine, a lot. I keep up with my PCP via patient portal after big specialist appointments. It’s good that she knows what’s going on and offers her perspective. I would appreciate this becoming more normalized. #patientchat |
| Carly Flumer (she/her) @carlyflumer @patientchat Using patient portals to not only ask questions of your doctor, but to communicate concerns and symptoms. You can also use them during appointments, such as bringing up lab info that was done by another doctor. #patientchat |
| Vera Rulon FAHIMA @vrulon T6: If we get over the barriers to #technology use in #healthcare - communication will be improved, you won't need to always be there in person, quality time could be spent discussing options (via real time data collection) #patientchat |
| Laurie Reed @LReedptadvocate @patientchat T6 Technology can be a good addition to care - having an electronic copy of records with access for other care providers as needed. Unfortunately, technology too often serves as a barrier during physician-patient interactions. #patientchat |
| Carly Flumer (she/her) @carlyflumer @patientchat I would also say use apps to your advantage, but make sure they’re reputable. Tracking how you’re feeling & sharing your journal/log with your doctor may give them a better understanding of what you’re going through. #patientchat |
| Melissa VanHouten @melissarvh In my opinion, technology is so under-used! Docs could use soc media 2 educate & engage; refer patients 2 online articles/videos 2 better inform of their illness & possible treatments, communicate more effectively/efficiently via portals/text/e-mail, virtual visits #PatientChat |
| Ody @OdyO11 @patientchat T6: It's a huge help when there is an option to contact doctors via Email. Technology can also cause problems, e.g. when it's too rigid (in reports etc.). #patientchat |
| Alexa Jett 🦋 @ohhiialexa Yes! Make sure they are *REPUTABLE*!! Apps can help a lot, but be sure to investigate. As I like to say, cancer (and other medical issues) are very exploitable. #patientchat |
| Pamela Walters @pammor123 #patientchat T6: I think it would be convenient to be able to text with your doctors. |
| Vera Rulon FAHIMA @vrulon @LReedsbooks @patientchat Depends on how you use it. If information is shared more fluidly, data captured real time, tech used to enhance VS being a burden. Data capture must be for the benefit of the patient. #patientchat |
| Marcela Musgrove @marcela @patientchat #t6 Telehealth can work especially in psych area but is still very underutilized #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
 | Dee Sparacio @womenofteal @patientchat Jumping in late. Great comments by others. The patient's Scientific literacy level and medical jargon which when initially diagnosed seem like you will never understand. #patientchat |
| Alexa Jett 🦋 @ohhiialexa @marcela @patientchat Yes! Telehealth in mental health would help solve a lot of accessibility issues. #patientchat |
| Dee Sparacio @womenofteal RT @melissarvh: One with open communication/discussion, mutual respect, honesty, demonstrated empathy, and genuine collaboration and cooperation. #PatientChat |
| Vera Rulon FAHIMA @vrulon @ohhiialexa @marcela @patientchat Sure is underutilized - and of such benefit. Would help a lot in this age of Corona... #patientchat |
| Alexa Jett 🦋 @ohhiialexa CT: I am always thrilled to see that we have similar thoughts, even if we express them differently. It shows we are on the same page and makes me hopeful that we can advocate for them effectively. I wish for a better provider-patient future! #patientchat |
| Vera Rulon FAHIMA @vrulon CT: Beef up some of these techniques in my own world. Don't hesitate to help others. Continue to be proactive in participatory medicine with my own PCP. #patientchat |
| Melissa VanHouten @melissarvh @Crohnoid Many physicians have - and I am certainly glad to see it! #PatientChat |
| Patient Empowerment Network @power4patients RT @melissarvh: In my opinion, technology is so under-used! Docs could use soc media 2 educate & engage; refer patients 2 online articles/videos 2 better inform of their illness & possible treatments, communicate more effectively/efficiently via portals/text/e-mail, virtual visits #PatientChat |
| Patient Empowerment Network @power4patients RT @carlyflumer: @patientchat I would also say use apps to your advantage, but make sure they’re reputable. Tracking how you’re feeling & sharing your journal/log with your doctor may give them a better understanding of what you’re going through. #patientchat |
| Alexa Jett 🦋 @ohhiialexa I love doctors participating in social media and tweetchats! (Shout out to @BZavaletaMD !) #patientchat |
| Dee Sparacio @womenofteal @patientchat T5 a. Patients need to learn it is OK to ask questions and keep asking until they understand and can make the best decision for them. b. Ask their provider for the best way to contact them or a specific nurse if they are having issues once they get home. #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Alexa Jett 🦋 @ohhiialexa RT @womenofteal: @patientchat T5 a. Patients need to learn it is OK to ask questions and keep asking until they understand and can make the best decision for them. b. Ask their provider for the best way to contact them or a specific nurse if they are having issues once they get home. #patientchat |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour |
| Alan Brewington @abrewi3010 Ct healthcare industry prioritizes money over our quality of life and access for a better #qol. That said, the industry is full of doctors nurses, etc who have amazing hearts and spirit. We need to worth together so that industry as a whole catches up to the everyday #patientchat |
| Patient Chat @patientchat We’ll be back in two weeks for another Empowered #patientchat on March 20th. Hope to see you there! https://t.co/fpXwDwJUba |
 | Christie F. VanHorne, M.Ed, MPH (she/her) @christie_mph RT @OdyO11: @carlyflumer @patientchat I'd add: @carlyflumer @patientchat I'd add: Allow patients to proof-read medical records and make sure any errors will be corrected. Otherwise, it can be a game of whisper-down-the lane. Often, reports are trusted more than what the patient says. This is problematic. #patientchat |
| Melissa VanHouten @melissarvh RT @patientchat: We’ll be back in two weeks for another Empowered #patientchat on March 20th. Hope to see you there! https://t.co/fpXwDwJUba |
| Vera Rulon FAHIMA @vrulon OK folks. Signing off. Thank you @patientchat for another excellent #patientchat!! |
| Patient Chat @patientchat Keep the conversation going between chats with hashtag #patientchat and let us know if you are interested in being a special guest on #patientchat |
 | Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat A1: Mutual respect, ability to listen (on both sides), willingness to learn (on both sides), a sense of being on the same team. #patientchat |
| Laurie Reed @LReedptadvocate @patientchat CT Thank you everyone for a great discussion. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: We’ll be back in two weeks for another Empowered #patientchat on March 20th. Hope to see you there! https://t.co/fpXwDwJUba |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T2: Power imbalance and knowledge imbalance. Time pressure on the care provider. Lack of listening skills and/or empathy skills on the part of the care provider. The care provider treating the illness, not the patient. #patientchat |
| Mary MACK @MaryOCMack T6: technology can be great, giving patients access to test results, etc. Too often, though, results are not there; merely your name and date of birth are the “result”. #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T3: I wish every care provider would have training in #narrativemedicine. Empathy, listening, seeing the whole person rather than just the disease - all of this would go so far in removing barriers to a patient-focused relationship. #patientchat |
| Inspire @InspireIsHealth #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat T6: Technology gives patients access to education and resources beyond what the provider shares in a time-pressured appointment. It can also connect to us to other patients, which can further educate and empower us. #patientchat |
| Rev. Dr. Stacey Simpson Duke @revdrduke @patientchat These uses of technology can reduce the power/knowledge imbalances between patient and providers, *if* providers can let go the sense of feeling threatened by what the internet offers patients. #patientchat |
#patientchat content from Twitter.